Thread: what to do
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Old 28-03-2012, 03:42 PM
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Skullfudge Skullfudge is offline
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Join Date: Oct 2008
Location: KENT
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Horrible condition that Rheumatoid arthritis.

My wife has had it for 11 years and it totally wrecks your life.

I've had wars with Guys Hospital trying to get my Mrs signed up on that new Biologic response modifier. It's in injection form and delivered to your house but you need to amass enough "points" before you are issued with it.

One point being one joint that is effected by RA. They told me that this treatment is £ 20K a year.

When you see your Mrs crying most nights in her sleep you want to do something about it and I have had 3 meetings over the past two years saying I am willing to pay for the new treatment and they STILL refused every time.

About 6 months ago I had enough and booked a meeting the Dr Gibbons who is one of the Europe's leading RA specialists and told him unless something is done I wont have a wife left. I gave him a detailed account of what my Mrs life is now like and for the first time he listened.

It then involved other specialists and it was agreed that Hev needed pushing up the ladder to achieve the points and she starts her first injection in 4 weeks .............. and it's free.

So get up there CJ. This new drug stops RA in it's tracks mate !
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